Nusinersen better know as Spinraza was available in the majority of EU countries at the time including on the NHS in Scotland. It was not available to access on the NHS England. A successful campaign was launched by the family with support from many well known faces. Local MP Mike Kane and London MP Lynn Brown made strong representations on behalf of the family. Treatment was approved on May 15th 2019 and Haris received his first dose on June 8th at Royal Manchester Children’s Hospital.